It has been a rough couple of weeks for the T1D community. This past week we’ve heard of two deaths, both young men, Will Hauver, 22, died February 2nd of complications of the flu and type 1. He was found unresponsive in his room. His good friend took a horrible situation and responded by honoring him by posting the Egg Crack Challenge that Will actually started back in August 2014! Finally a challenge for type 1 diabetes! Check it out: https://www.youtube.com/watch?v=telyvhmhq6Q or follow his egg challenge: https://www.facebook.com/events/600307130114329
Another story that emerged this week was that of 25 year old Michael Dodd, this is what the article said: The family must await the findings of a post mortem examination but mum Jo fears it is ‘most likely’ he succumbed to the diabetes he had lived with since the age of 14. She feels her son has been desperately unlucky as this was only the second time he had suffered such a serious hypoglycemic attack. My prayers are with both of these families.
You can read more: http://www.chesterchronicle.co.uk/news/chester-cheshire-news/parents-pay-tribute-diabetic-son-8662374
In my last post I spoke of a little girl, Kycie, who on January 25th was rushed to the hospital with seizures. She is still in the hospital and has a long recovery ahead. I’m going to tell you a little bit of her story, as told by her dad. I normally do not write my blogs based on someone else’s story, but I feel so strongly that this story can save lives. It’s so tragic, and while it’s not the only story out there of it’s kind, it’s getting a lot of attention in the type 1 community. I’m writing about her because it needs to get to the non Type 1 community! The symptoms need to get out there so we don’t have to read about these tragedies. The father in this story admits that he missed signs, like we ALL do.
Here is what Kycie’s dad Josh said about her condition:
“From what we were told by numerous doctors, Kycie’s current situation was the result of “the perfect storm” as one put it. It was not one particular thing that caused this, but a culmination of several events that all went wrong. When it was discovered that Kycie’s blood sugar was 1148, she was placed on an IV and given the proper amt of insulin according to her age and weight. In-flight, her blood sugar dropped to rapidly causing an increase in the swelling on her brain. This is what caused her brain to herniate into the brain stem. As I understand, at this critical time (at PCH ER) the decision had to be made to intubate (breathing tube.) Had they not put the breathing tube in Kycie would have died before she made it to the PICU. However, intubating a child in full blow DKA can worsen the situation. Prolonged swelling of the brain caused lack of blood and oxygen to important regions of her brain. Hence, the perfect storm. But Kycie is alive and fighting thanks to the amazing doctors, nurses and an overflow of prayers to a merciful and loving Heavenly Father. Kycie is not in a coma. She is recovering from a traumatic brain injury and being treated for Type 1 diabetes. I have so much to say on both these conditions but Instagram only lets me write so much. So tomorrow, pray for meaningful movements as you have been.”
This explains what happened once her body went into DKA, now here are a few of their posts over the past few weeks, giving updates along the way.
A post from 3 weeks ago, right after she arrived at the hospital: “We spoke with neuro this morning and they reviewed Kycie’s MRI. They said there is extensive damage in the brain. They said if she survives to prepare ourselves for her to be severely handicapped. They will do another MRI in 72 hours and at that point consider taking her off the breathing machine. Jamie and I know it would take a miracle at this point and have left her in the hands of God. This was not the news we were hoping for. Right now we are just trying to wrap our head around it. Thank you all for the prayers. Definitely felt.”
To put it mildly, it has been a rough few weeks for this family, unimaginable really. You wake up one day and your entire world is rocked to the core, changed forever.
Today, Kycie has both speech and physical therapy. Little tiny miracles are happening each day, even though they were told that their daughter’s condition may never change, they are hopeful. The two MRI results weren’t good, the 2nd worst than the first. But the family stays positive and hopeful. Isn’t that how we cope in situations like this? This week she will have more tests, another MRI, to see what the next course of action will be. Our prayers are with her and her family! UPDATE: 2/25/15: Kycie’s MRI revealed that the blood clot has gotten smaller! Great news! You can follow Kycie’s story here: Instagram @jjterry77 or @jandjterry or search #kissesfokKacie or #pleaseprayforkycie or on facebook: https://www.facebook.com/kissesforkycie
I know that some will criticize me for writing this blog, about death especially. But, death and tragedy are apart of the type 1 community, it’s a fact, so we need to talk about it. Talk about doing more to raise money so the deaths and tragedies STOP!
Then there are the dreams that we all have for our kids with type 1, and thankfully we have great role models for them to follow.
This past week Ryan Reed won his first NASCAR XFINITY series win at Daytona International Speedway! That’s incredible. You can follow Ryan’s success on his facebook page:https://www.facebook.com/driverRyanReed
I am going to end with my own son Joey’s success. Joey was diagnosed with type 1 at the age of 8. He never let type 1 control what he was going to do. “Yeah, it sucks, but it’s part of who I am so I make the most of it.” Joey plays multiple sports, right now it’s basketball season. His team took home the trophy at a tournament, he contributes 110% to the success of the team. We are so proud of him.